Written
By: Katie Rose
When
you see a couple together and one has a physical
disability, what is the first thing you think
of? Do you ever feel sorry for them? Do you
ever wonder what their sex life is like? Im
almost ashamed to admit that Ive had thoughts
like that. It seems so demeaning and stereotypical
when I look back on it. Okay, maybe I'm a bit
strange, but lucky for you this has led to the
writing of this article.
People
with disabilities are considered non sexual
or asexual by those in society defined as normal.
Disabled people are generalized as always happy,
and meek people, void of opinions and having
their place. Those non disabled dont think
the disabled or physically challenged have wet
dreams, masturbate or have sexual urges. I honestly
didnt think Id had much exposure
to physically challenged individuals, until
I took a serious look around. According to the
census bureau approximately 1 in 5 Americans
have some sort of physical disability. When
I began doing research for this article I was
overwhelmed by the lack of information available
on sexually active disabled adults. However,
I was lucky enough to get to know one couple
that was willing to share their story.
Kim
and Ron met online. After three months of corresponding
by emails, instant messages, and phone conversations
they were finally ready to meet in person. Cue
the cheesy soundtrack and kick the insecurities
into overdrive.
To
Kim, Ron seemed like the ideal potential partner.
She wasn't ready to say she'd met her soul mate,
but they seemed to get along really well. They
had many similar interests. She found him fun
and very easy to talk with, and their conversations
were mentally stimulating. They had exchanged
pictures and finally the time had come for them
to meet in person.
A
week before the fateful "date" Kim
watched a message appear on her screen.
"I
have CP, Cerebral Palsy."
Her
initial reaction was, "What does that mean?"
"It
means that in my case, I am as normal as the
next guy, except it affects the way that I walk,"
hed typed.
This
was an interesting turn of events. So the man
had a physical disability. How did she feel
about this revelation?
My
first thought was, okay, how bad could this
be? So I did an online search to learn more
about CP. Some of what I found was a bit frightening,
describing worse case scenarios, but some of
it was encouraging, so I asked him to tell me
a bit more about his situation.
Rons
description went on to tell how he had been
born with CP, and how he dealt with his disability
as he grew up. Mostly CP limits his mobility,
but its not the kind of thing that has
kept him homebound. He shared more of what he
can do, and how he has to adjust a few everyday
activities to adapt, but reinforced that he
doesnt really see those things as a roadblock
in his life.
"As
I had come to know Ron, I had learned there
was so much more to him than just a physical
disability. He was well educated, held a college
degree and could easily hold up his end of a
good debate. He held a steady job in the public
eye. His interests were not limited to books
and theory, but he had many hobbies that were
quite physical. It did come as a bit of a surprise
that he didn't tell me sooner in our 'getting
to know you' period, but I decided that I liked
him enough to want to at least meet him, no
matter if he had CP or not. It wasn't like we
were planning on running off to get married.
At this point, he was just a good friend, albeit
a friend who I had entertained both romantic
and sexual thoughts about.
"Of
course, after he told me about it, I did think
about how his CP would make a sexual relationship
different from what I had experienced in the
past. What kind of adjustments would I have
to make to how Im used to having sex because
of his CP? I didn't think that I would have
a problem accepting the fact that he had a disability
but I worried that perhaps I wouldn't be able
to reconcile Ron from online with the real life
Ron that would be standing in front of me, with
his disability being so obvious, and I worried
that I'd somehow do something wrong. I dont
know what I thought I might do wrong, but I
was afraid that I might hurt him somehow or
that I might unintentionally hurt his feelings
if there was something that I wanted to do sexually,
and he would not be able to physically do it."
His
Side: "I wanted Kim to see me as a person
rather than as a disability. I wanted her to
now that I'm normal in almost every way - equal
to any other guy she might meet. I really liked
her, but I wanted her to give me a fair chance.
I was afraid that if I told her about it right
from the beginning that it might scare her off
before she got to know me."
"My
track record of relationships was not good.
To begin with, even though I was raised to be
independent and went to public schools, my experiences
with girls were very limited. As a teenager,
and when I was in my twenties, recreation and
education took front stage. I didn't really
have time for a girlfriend. As I went through
my thirties, I had more time for a relationship
but none of those relationships ever became
serious, and they almost never became sexual.
The women all knew about my CP because it is
obvious the minute I take a step, but they all
wanted to have platonic relationships. I was
a great guy and they liked me, but not 'that'
way.
"My
level of sexual frustration was quite high.
When I was younger masturbation was my outlet.
As I got older, masturbation became boring.
I just stopped doing it. Then I met Kim online.
I knew what I had done in the past had not brought
me the results that I wanted, so I decided to
do things differently. Maybe it was misleading,
but because she understood, it all worked out.
I
also worried that I might not be able to please
her physically. Like I said earlier, I wasnt
a virgin, but all my other experiences involved
a high level of alcohol use. I knew all the
motions to go through, but Id never had
the opportunity or the desire for that matter
to perfect the act. I know that sounds clinical,
but I already knew all my parts worked, now
I just needed to know how to make the parts
work to bring her optimal pleasure. Also, past
partners had told me that it was good, but in
the back of my mind I had my own doubts. Many
people feel it necessary to withhold their true
feelings from disabled people in an effort to
guard them from being hurt. People are not honest
with people who have disabilities. Like they
dont want to tell us the truth because
theyre afraid theyll hurt our feelings.
Kim
added: I never had a problem with being
honest with Ron. I figure it wont do me
any good to lie to him or to fake it
because Im just hurting myself in the
end. How can I expect to get the kind of stimulation
I need if I dont tell him? I dont
think that is a thought that is directed towards
people with disabilities, but it pertains to
any couple.
A
large part of the population is disabled - anything
from blindness, CP, Muscular Dystrophy, back
and neck injuries, and there are many websites
that offer suggestions on how a couple can adjust
their sex life to accommodate a disability,
whether that is by trying different positions
or by trying different types of stimulation.
So, what was it like for them to become sexually
involved?
She
said: "From the moment I set eyes on Ron,
I knew I wouldn't have a problem with his CP
on a relationship level, but I was curious to
know if everything else worked. Because he was
inexperienced he was extremely inquisitive.
He wanted to learn everything about how a woman's
body reacts to stimulation. I know he was nervous,
and he asked questions constantly, but that
didn't bother me. Maybe because we were so open
with each other about sexual issues and concerns."
He
said: "When we first started to get intimate
I did have some concerns. I wasn't a virgin,
but my past definitely robbed me of some necessary
information. It had been a long time since I
had been with a woman, at least a woman that
I cared about and wanted to be with for a long
time. I was nervous because I wanted things
to be just right. We did have to make some adjustments
and find positions that worked best for us,
but it sure was fun testing different things.
Sometimes my body doesn't do what I want it
to do, which can be frustrating for me. I want
to try a new position or a different form of
stimulation, either by moving in a certain position
and it just doesn't work. Thankfully, Kim is
very understanding. When something just isn't
working for me, all I have to do is tell her
and she's willing to try something else. The
first couple of times that Kim and I tried to
make love, I just couldnt orgasm while
having intercourse. I dont know if it
was because I felt I was under pressure, or
if it was because I was used to being able to
reach orgasm only by using my hand and I was
sort of conditioned that way. But I was able
to come by her pleasuring me with her mouth,
or by my own hand while I watched her as we
masturbated together, so that kept me in a good
frame of mind, helping me to just relax and
let happen whatever may. Kim was really understanding,
and that helped too."
Kim
added: I just figured that we needed a
period of adjustment. Sort of a getting used
to each others bodies time. Because I
knew his recent sexual history, it was easier
for me to understand why he could come by his
own hand, but couldnt come while he was
inside of me. Believe me, since that time weve
discovered that there isnt anything wrong
with his penis, and that the CP doesnt
affect it in any way. The first time he was
able to orgasm inside of me was like we had
made it to a major milestone, but it was just
the beginning of learning about all the different
ways we can bring each other pleasure. Weve
discovered that we both enjoy mutual masturbation.
Some days his muscles will be acting up or Ill
be stressed or for some reason we just dont
feel like having sex, we still can enjoy some
very sexual, sensual time by masturbating in
front of each other. That in itself helps us
to learn more about each other.
The fact remains that a person who is able-bodied
should not dismiss a person with a disability
because of the disability. Many people with
disabilities can have very productive sexual
lives, if given the chance.
He
said: "When I first met Kim, I knew that
I liked her as a person, but also knew that
in order to keep her attention I had to set
myself apart from any other person that she
might meet. I also knew eventually I would need
to tell her about my CP. I do admit that since
we started seeing each other in person, I still
find myself occasionally wondering why she is
with me, almost like I dont deserve her."
She
said: "When Ron told me what his romantic
life was like before me, I was somewhat surprised.
I found it hard to understand why these other
women he had been involved with wanted only
a platonic relationship. I understand friends
who don't want to become sexually active because
they are afraid sex will screw up the friendship,
but that wasn't always the case for him. Sometimes
it seemed that the women were either afraid
of dealing with his disability and how it effects
sex or they seemed to be very selfish. I often
say that they don't know what they were missing.
There was another part of him that they didn't
allow him to share with them. I see myself as
a very lucky person."
How
did Kim's reaction to his disability affect
their relationship?
"I
think that Kim's attitude towards my CP greatly
helped not only our sex life, but also my own
self esteem. She makes me feel like I'm free
to ask her just about anything that I want."
Would
Kim rather that they had met in person right
from the beginning?
"I
am very happy that Ron and I met each other
the way we did. Had we met each other in a more
traditional social situation, like at a bar,
I don't know that we would be together now.
I like to think that I would not have let his
disability sway my judgment or that I would
not have been so shallow, but quite honestly
I don't know. I'm really glad that I got to
know him better before we met in person. It
was like we dated for three months before we
actually dated. I knew his likes, dislikes,
interests and family and I found that by the
time we met face to face we had plenty of things
to talk about, and I didn't even think about
his disability."
So,
is it that much different having sex with someone
with a disability as opposed to a so-called
normal person?
I
suppose it depends upon what the disability
is, Kim said. If it is something
like a paralysis or spinal damage, Im
sure there are many adjustments that have to
be made. Is it the kind of disability that will
change over time, like multiple sclerosis? Then
you have to constantly make adjustments, finding
your own comfort level. Youll have to
try different things to find the optimal positions
for intercourse, but what some people fail to
see it that having a sexual relationship doesnt
mean you have to have intercourse. Sex is so
much more than putting the thing in the thing.
Its the emotional feelings mixed with
the physical feelings. Its give and take.
For us, weve been able to do almost anything
we want by making adjustments. Even the kitchen
counter isnt off limits - lol. We just
need to make sure that the height is right to
not cause a strain on his leg muscles. Pillows
are definitely our friends.
What
advice did they have for others who are considering
a relationship with a person with a disability?
"Take
a chance," Kim said. "If you give
a person some time to get to know you, and for
you to get to know them, you might be surprised
by the person beneath the disability. Oh, and
be flexible and open to trying new things."
Ron's
thoughts: "Communication is very important.
When you get to the point where you're going
to be sexually active, you need to feel free
to tell your partner what your needs are. If
you have a question, feel free to ask. If you
need to try a different position, make sure
you tell your partner. And most of all, have
an open mind."
To
me, that sounds like good advice for keeping
any relationship from becoming disabled.
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